Brain tumour (embryonal)

Rare Embryonal Tumors of the Central Nervous System: International Registry

Who can joinChildren and adults

Age1 Day–25 years

Kind of studyObservational: no new treatment

What it testsWatches and records only

The full list of who can and cannot join is on the registry. Ask the trial team, or write to us and we will explain it in simple words.

Where to go

1 hospital in India taking patients for this trial.

National Cancer Institute, All India Institutes of Medical SciencesNew DelhiDirections ↗

Registry summary (technical)

Central nervous system (CNS) tumors are the most common solid malignancies among children. Although some types of CNS tumors like medulloblastomas and low-grade gliomas are widespread and well-studied, there is a huge number of rare diseases that need further research. This international registry aims to establish a large multicenter database of pediatric and young adult patients with rare embryonal tumors of the central nervous system and describe the clinical presentations, diagnostics, treatment regimens, and outcomes. Embryonal tumors with multilayered rosettes (ETMR), FOXR2-activated CNS …

Sponsor: Immune Oncology Research Institute
NCT05711992 on ClinicalTrials.gov
Last updated on the registry 8 May 2025 · read by us 20 Oct 2026

Brain tumour (embryonal)

Where to go

Need help reaching the trial team? Write to us.